August 23, 2019

Neuropathy Diagnosis and Week in Review

Well, it hasn't been the best of weeks, nor has it been the worst.  I was very tired by Saturday and my husband wasn't feeling well, so I took it really easy and pretty much only prepared dinner (it took all day).  Sunday wasn't much better.  Monday was a pretty bad day but I had an appointment an hour away with my neurologist, so we got up and made ourselves presentable.

I couldn't stop crying on Monday.  No major changes, just realized it has been a year and I still don't know what's causing the vertigo.  The provider confirmed records were sent to Broadspire as requested and the letter I sent was in my records.  She explained that Neuropathy is my diagnosis and the cause of my vertigo, and now we're exploring treatment options.  She said Neuropathy is progressive and won't go away.  She said I have it in my feet but not my hands which is bizarre since my hands and right arm seem to have much more significant sensation problems.  It is great to have a diagnosis!  Now, I need to educate myself on what Neuropathy really is, because it's evidently much more than I previously thought.

My nephew and I had class Tuesday through today.  He's sitting next to me, chattering nonstop, while I try to type out my thoughts.  He's able to stay on task and do his lessons with minimal assistance now.

Tuesday, I reached out to my sponsor and asked her to stop to visit after work.  We had a really nice visit, even though it's very hard for me to ask for help.  I did it!  My friend was a great help to me!  Lesson learned, hopefully.  

Now, he's sitting next to me, reading aloud from "Harry Potter and the Sorcerer's Assistant" by J.K. Rowling.  We've got the whole set to read and neither of us have read them all.

We've been sick most of the week because my nephew's little brother shared a bug with us and it has gone from person to person.  I think my husband has the worst of it today.  I had it bad yesterday and spent most of the day sleeping on the couch so my nephew could ask me any questions he had.

All in all, it was a decent week and we did what we needed to do and even beyond that.  We accepted adversity and made the best of it; we even got Federico's for lunch on Thursday.  My nephew has matured dramatically over the summer and we're working on more complicated skills now.  Woohoo!

I found out my last supervisor (the abusive one), has lost almost all her employees to positions in other departments and one employee even just walked off the job.  She screamed at a couple when she found out they applied to different jobs and accused them of being disloyal.  Someone needs to ask her what the common denominator is in her employee retention problems.       Hmmm.  Ironic that a person who is supposed to protect children from abuse is herself abusing her employees.

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